An excellent book on Noonan Syndrome has recently been published:
Noonan Syndrome - Characteristics, development and intervention, by Stephen von Tetzchener, of the Centre for Rare Disorders, The National Hospital, Oslo.
The book contains a great deal of useful information, and includes chapters on
 | Noonan syndrome - history and definition |
| Medical and physical characteristics |
| Diagnosis, pregnancy, and early development |
| Motor, cognitive, and language development |
| Social development, behavioural disorders, and personality |
| Intervention |
| Research Tasks |
As well as a great deal of medical information and references, the book also contains quotes from parents and children, describing some of the problems of living with NS that may not have been considered before - particularly by the medical profession.
You can purchase a copy from me for £12, which includes postage and packing. (Orders outside the UK may incur an extra charge for P&P) If you are interested then please email me.
Orders from within the United States and Canada should be sent to Wanda Robinson of The Noonan Syndrome Support Group. email Wanda